Reimagining Dementia: A Creative Coalition

Who We Are

Reimagining Dementia: A Creative Coalition for Justice is an international group of dementia activists and allies – health professionals people living with dementia (young and old); carers/care partners; family and community members; advocates, artists, academics, policy makers and others – who share a diverse and humanizing vision of care and support that promotes inclusion, relationality, creativity, joy and the possibility of growth for everyone living with, and impacted by, dementia. We focus on developing projects, programs, policies and approaches that successfully use play, performance, improvisation and the arts to creatively
challenge the biomedical and institutional approaches to care, and the fear, stigma and hopelessness they perpetuate. In the midst of a global pandemic, we are
mobilizing tens of thousands of people with dementia and their families – together with the communities and care settings in which they live – to create environments in
which everyone is supported to thrive and to grow.
We join with millions of people across the globe in calling for an end to racial, social, environmental, and economic injustice in all sectors of society. No human life is disposable! As part of this international uprising, we issue a specific call for the radical transformation of the very attitudes and conditions that are contributing to the isolation, abuse, and neglect within and outside of long-term and community-based care settings by means of, for example, the pathologizing of human experience, and
the use of chemical, physical, and environmental restraints.
There are most certainly compassionate, innovative, and deeply caring health professionals in the system; but this is often despite a system that devalues them, not because of it. This broken system of care has created a perfect storm in which COVID-19 has disproportionately claimed the lives of older citizens across the world. This is an international atrocity that has made it transparently and tragically clear that these systemic vulnerabilities are of our own making; we are failing our oldest, our poorest, and our most vulnerable populations. Inspired by other dementia activists, it is our contention that we can and must do better. We can and must seize this moment to come together in new and more powerful ways.

We can, and must, find ways to leverage our collective resources, expertise and passion to organize and mobilize a grassroots force that can move the conversation about aging and dementia in a positive, creative, inclusive, just and life-affirming direction.

If you are interested in:
● Transforming the broader culture that produces and reproduces the stigma associated with aging and dementia;
● Reforming the culture and practice of health and wellness, dementia, and aged care and support;
● Challenging the ethics and assumptions of institutionalized care and advocating for creative, relational, and inclusive approaches that support ongoing growth and development for all in caring contexts;
● Amplifying the voices of people living with dementia, and finding ways to share with the world what they and the dementia community have learned about living more joyfully with uncertainty, fear and isolation;
● Advancing the role that art + activism + technology can play in raising awareness and promoting social transformation; and
● Bringing play, performance, improvisation and the arts into homes, organizations, communities and dementia care and support settings.

…we hope you will work with us in making a difference at the local, national, and/or global level. Whether you can do a little or a lot, you are welcome. We are in this for the long haul, so we hope you will join us in making sure our impact is felt long after this crisis has ended.

Sign up as a member of Reimagining Dementia and endorse the Call to Action.

See who else has joined Reimagining Dementia.

If you have questions, or want to connect with Reimagining Dementia, contact our
Coordinator, Mary Fridley, at

We look forward to creating with you!

“Reimagining Dementia means finding new ways of seeing the world around us. It means using our creativity to problem solve, create community, and shift the narrative of dementia.”

– Coalition Member

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