Cultivating a community wealthy in hope, creativity, joy, and faith. Working in a range of settings, including community organizations, care communities, and in the home.
Kathryne Fassbender, CDCS
Dementia and Creative Engagement Specialist, and the granddaughter of someone who lived with Vascular Dementia.
Kathryne Fassbender is passionate about being present for those living with dementia and magnifying the importance of creativity and human connection. She is a classically trained musician and studio artist, with a background in the creative arts therapies.
Kathryne is a Certified Dementia Communication Specialist, Alzheimer’s Foundation of America Certified Dementia Care Professional, Purple Angel Ambassador, public speaker, dementia trainer, and Certified TimeSlips Facilitator. She is trained in building Creative Communities of Care via the Create/Change Institute.
Email me: firstname.lastname@example.org
In my 6th-grade science class, my peers started talking about dementia. At the time I had no clue what it really was, nor was I aware of anyone in my life who had dementia. I knew enough though, that when a classmate started calling it, “old timer’s disease” to be appalled by that comment. This launched my passion for working with dementia as a volunteer. In 2005 when my grandmother was diagnosed with Vascular Dementia, the story become personal. My view of dementia as well as a greater awareness of what it means to live with dementia drastically changed. I experienced the struggles, stereotypes, and the family journey. The world of dementia that I had moved into continued to grow, evolve, and transformed once again as I worked to make dementia my vocation.
The Dementia Letters Project started off as a blend of Life Enrichment work, and volunteering (at the time named, Bonae Memorie.) In 2017, I started the shift towards working as an independent contractor, and in 2018 I officially launched the Dementia Letters Project.
Over that last 15 years I have recognized the need for those living with dementia to tell their story, and for the greater community to start having a different type of conversation. There exists a longing to move away from the doom and gloom and into joy. I started the project as a way to help all of us share our story of dementia and move into that joy.
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