We were created for a time such as this! In our ever-changing world, we were created with this moment as part of our narrative. As the Dementia Letters Project community, now is the time for which we will thrive together. Now is the time when you can share with younger generations the beauty of your strength, your joy, your hope, and the stories of your life.
The Dementia Letters Project was created for a time such as this! It was created as a way to share something we felt compelled to share about our dementia journey, for ourselves, for dementia, for our families, for our community. During this time I have been sending out my own letters to family, friends, and to residents in care communities, to share a moment of light in the darkness.
As artists and storytellers, we were created for a time such as this! We were created to create and this moment has inspired or has provided us with the time, to create what our heart has longed to put out into the world. Some of us are creating new things each day, each hour, some of us are dreaming of the art we would like to create but have yet to open our ArtBin. No matter where you are, you are right where you need to be, doing what you need to do. Sometimes simply daydreaming about all the things that inspire us brings greater joy into our lives than actually creating something new. I trust that someday your art will make it out and on to your canvas, paper, or through your fingers and onto the keys.
We were created for a time such as this! No, this is not a declaration of punishment, of despair, or ugliness. It is a declaration of the beauty of the human spirit to survive, thrive, and grow no matter what the world may look like at any given moment. This can be hard. It can be hard for everyone no matter what age or status in life one may be currently living. But, for the care partner, there is a special moment of prayer and gratitude that goes out to you!
As family care partners your world has been thrown off, that routine you worked hard to develop and keep is no longer possible. Life has gone virtual and not all of us were equipped to make such a move. There are homes without a computer or iPad, or even an internet connection. Some families now have children home full-time needing assistance to attend school via online classes, with parents trying to care for their children and help their parents stay connected. Some programs don’t work via Zoom, which cannot simply flip the switch. Some programs can work, but we may be struggling to navigate the new world feeling disconnected, anxious, and out of sorts as we work a video call. And then there are our own emotions, worries, and health. We are navigating the dark unknown during a time such as this.
As professional care partners, you are on the front lines, you are navigating a world that many of us may not understand. You are caring for our loved ones and community members, doing your best to make sure they don’t get sick while now trying to also figure out how to engage and create with the residents. You are meeting them, quite possibly, in true person-centered/relationship-centerd care form. You are learning new ways of becoming relational with those you serve. You are forced to become relational with the residents in ways beyond a task list, in ways beyond the role you initially signed up for when to took this job. And because of this, our care communities can make this moment a moment of transformation into a new way of living. Yet, this time is painful, dark, and scary. You may not see the growth, only the dwindling resources, the fear of getting sick yourself and bring it to your family at home or your residents. You fear a spread of illness, on top of the many other concerns you might have during a “normal” time. You are exploring a new world during a time such as this.
We were created for a time such as this. We were created to grow, to transform, to love, and to care. We were created to create something new, be it in the fine arts, or in our community, or in the world of health care. Our differences have been magnified, but so has our collective humanity and goodness. We are walking the unknown journey towards an unknown end, but we are walking it together as human beings in communion with one another. While we see the true colors of many leaders and peers, disagreeing with or being encouraged by what we see, it is our task to respond with compassion, prayer, and understanding as they too are scared, struggling, and wondering if what they are doing is enough. Now is not the time to criticize, but to support and understand in a time such as this.
We were created for a time such as this, to dream and to hope, to find joy and to allow ourselves to mourn. The world has been through darker times, so we frequently hear, and that does not always help. But we have the strength of our human spirit, and we can see the light along this unknown journey, and together we will walk to support each other, to encourage each other, and to live during a time such as this.