Fellow Visionaries! Do Not Give Up!

Every once in a while I hear a peer of mine say they are going to give up trying. Burnt out by the current medical and care world, tired of being told their ideas are not worthy of exploration or not inline with the “industry standards.” They are tired. We are tired. Not too long ago, I overheard a woman say that she was going to quit her position and move into a role where she could no longer be abused for her ideas. She was referring to an incident with a care community she worked for, poured her heart and soul into, deciding after she left, to implement one of her ideas in their memory care community. They executed the plan point by point and took credit as if the idea was their own. They did this, not only after she left the job, but also after they told the ideas didn’t fit the image they wanted, nor were any other communities doing anything like this program. I wanted to go up to her, hug her, and tell her to keep going! This would have been a touch creepy since I didn’t know her, nor was I fully apart of the conversation. I chose to not say anything to her. I regretted that decision later that day and posted on Twitter this statement,

“It is rough being a visionary, to suggest ways to improve care and connection, only to be knocked down and see the organization or program, a few months or years later, be implement without you, the exact thing you brought to the table. But keep going. We need you!”

I know this statement doesn’t make up for remaining silent, but I hoped a larger audience would see it, and maybe find some comfort, or at least feel a spark of energy to keep going.

Anyone at any time who has called themselves, or were called by others, a visionary or innovator, has experienced someone telling you your ideas are “stupid” (or a related statement fitting for your setting) and have them turn around without you to do exactly (or something almost identical) what you worked for and shared. It starts in grade school and moves into the professional world. It hurts, stings, is frustrating and causes us to feel a range of emotions. You have every right to go through this emotional journey, but please, don’t give up!

Whether you are the type of person that uses this experience to fuel you or not, know that we must keep going! While someone may have used your ideas and plan as their own, it was still set into motion by people who have a different lens of the world. You could go and do the program, exactly how you envisioned it, and it could be completely different because it came from the unique perspective and talents you bring to the experience. You may be working with a different group of people, in a different area or stage of life. The impact will be no less powerful. The lives you touch are no less worthy.

As I type this, I am feeling the sting of this experience. In short, a graduate program recently implemented two ideas that I had regarding theatre and older adults. These programs, while not exact, were quite similar to what I shared with the program back in 2012 in meetings with faculty. At the time of presenting these ideas and sharing how I would like to apply the degree to my work in aging and dementia, I was given the run-around. They combined a blend of comments with those sounding something along the lines of, “We don’t work with that population. It is not something we focus on and don’t see ourselves changing.” This hurt of course, but I moved forward. These theatre programs were put in place over the past two years, without me, without my input, without my knowledge, and one of the programs received international attention. This stings, respect for these individuals sinks lower, and where does one go from here? This place of hurt, betrayal, and abuse? We move forward! We create something new. We focus on those we wish to serve and support, and we envision a new program, event, and/or connection. There is enough work for all of us! While the actions of organizations such as this university are wrong and borderline unethical, it happens. It occurs on some scale every single day. If we are true visionaries, we will find something new, improve on what this group of people did, learning from their mistakes and enhancing their successes. There is another theatre piece in me, another creative idea already starting to take motion, and the people that this work will impact will far outweigh the hurt of this present moment. It is hard, but don’t think of the administration that is abusing you, think of the people these programs and models will benefit. If necessary, confront those abusing your innovation and vision, but don’t allow it to take over your every thought, or cause you to want to quit your job. Only you know the line that must never be crossed in your life. Keep going, keep creating, keep working towards a better way to care, serve, and support the lives of those around us.

Published by Kathryne Fassbender

I am a Dementia and Creative Engagement Specialist. I am also the granddaughter of someone who lived with Vascular Dementia.

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